About

Thank you so much for visiting msnewstoday! My name is Caroline. I am 30 and have had MS for about 13 years (got it when I was 17). I’ve been on many of the currently available drugs at one point or another (Betaseron, Copaxone, Tysabri, oral methotrexate, solumedrol, obv). I am currently taking Avonex and monthly IVIG infusions. This combination has really done well for me over the last decade.

I started this blog because I feel that there is a paucity of good, cathartic information out there presented by credible sources in MS. It’s an exciting time to have MS (I mean, as exciting as having a chronic neurological disease can be). New information and treatments are popping up everywhere. I want to house it all in one easy place for everyone to see at once.

The purpose of this blog is to present new, fresh information using a platform that’s easily accessible for all. I post information about MS that I feel is relevant to people with MS. I welcome comments, critiques, and any other feedback! You can email me at caroline@msnewstoday.com. I would love to hear from you!

COMMENTS / 5 COMMENTS

Hello,

This is not a comment, just a note to say thank you for a nice blog (I did not find an email contact).

My wife was diagnosed with MS last year at 37. This was, no surprise here, a shock and this coupled with an international relocation, two small kids (of which one was starting school in a new country) = a big mess.

I read a lot about MS and its therapies (somehow unfortunately we both hold a PhD in science 5bio and physics) so we had the reflex to search and search and search) and this is how I got to your site.

Thanks for sharing news about this [censored][censored][censored] illness — we live in France so the news you publish are very relevant.

I saw that you did not mention the vitamin D buzz (last AAN meeting, http://www.webmd.com/multiple-sclerosis/news/20090428/high-doses-vitamin-d-cut-ms-relapses ) — we plan to give that a try this summer.

Thanks again!

Cheers,
Wojtek

Wojtek added this on Jun 19 09 at 6:55 am

Thank you so much for the feedback, Wojtek! I have now added an email address to my Profile (caroline@msnewstoday.com). I also added a post about the Vitamin D info you sent today! Thank you!

All the best,
Caroline

caroline added this on Jun 19 09 at 10:45 am

Hi Caroline,
Love your website, it’s very informative. I was diagnoised in 1997 and have been on the Roy L. Swank diet ever since and it has served me fairly well. I did try Avonex for about 1 1/2 years,(My neurologist convinced me I needed the $3,000 a month shots!) but just don’t like the idea of compromising my immune system further so I stopped. Now I’m just following a diet suggested by Ann Boroch in her book, Healing MS, and supplementing that by using the tips out of another book, The Sugar Addict’s Total Recovery, and I’m feeling great and have had no recent exaserbations. My Candida overgrowth has cleared up as well as some of my physical problems, though not all. I still have balance issues and numbness in extremities. But those are probably still residual symptoms from frostbite and carpal tunnel syndrome.
I too spend hours on the internet researching all MS related articles. There are so many! I too try to stay with only medical sites, not ones with agendas to try and sell me supplements or drugs.
Keep up the good work and I’ll return often to read what you find.
Good luck on our journey of discovery!!

Lora added this on Aug 30 09 at 8:56 am

It’s amazing to me that we can go to any one web site devoted to medical news and find in this case, three separate but related studies on proteins and their relationship to MS, being done all over the world. I hope these research centers share this info and all the other B-cell, Stem cell etc. breakthrough’s they make. But I’m sure it all comes down to the research dollars and none of them probably want to give an edge to a competitor. I hate being a cynic, but………..

Discovery of 12 Proteins associated with pediatric multiple sclerosis
22, April 2009
http://www.news-medical.net/news/2009/04/22/48634.aspx
A group of 12 proteins associated with pediatric multiple sclerosis (MS) have been discovered for the first time by a team of neurology and pathology researchers at Stony Brook University Medical Center

Proteomics helps find key to keeping cells in shape
6. August 2009
http://www.news-medical.net/?tag=/Proteomics
Yale University researchers have discovered how a protein within most cell membranes helps maintain normal cell size, a breakthrough in basic biology that has implications for a variety of diseases such as sickle cell anemia and disorders of the nervous system.

Australian researchers to discover proteins that cause multiple sclerosis
26, August 2009
http://www.news-medical.net/news/20090826/Australian-researchers-to-discover-proteins-that-cause-multiple-sclerosis.aspx
Australian researchers will aim to discover the proteins that cause multiple sclerosis (MS), thanks to a new nationwide research effort.

Lora added this on Aug 30 09 at 11:33 am

Dear Lora,
Thank you so much for your comment! If you feel like you want to contribute something or would like me to publish anything regarding MS and diet (or anything else), please email me at caroline@msnewstoday.com! A few people have asked me to post information about this and I just haven’t gotten around to it.
Be well,
Caroline

caroline added this on Aug 30 09 at 2:58 pm

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